Februari 01, 2010
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Ebook The First Year: Multiple Sclerosis: An Essential Guide for the Newly Diagnosed, by Margaret Blackstone
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The First Year: Multiple Sclerosis: An Essential Guide for the Newly Diagnosed, by Margaret Blackstone
Ebook The First Year: Multiple Sclerosis: An Essential Guide for the Newly Diagnosed, by Margaret Blackstone
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Review
"[Offers] practical answers at a time of profound fragility." -- Richard Cohen"[A]n important book for patients and their families. It includes resources for travel, MS Organizations, employment laws, alternative and complementary therapies, and medications.""Blackstone is an ideal person to write about the first year of living with MS... [she] delivers as truthful but 'don't panic' picture of MS, validating and informing about the facts, the fears, and the nuts and bolts.""In Margaret Blackstone's gracefully organized journey through the first year of multiple sclerosis, personal stories and important information are seamlessly woven to provide comfort and power to those newly diagnosed. Ms. Blackstone's book offers the best medicine there is: hope through knowledge and positive action." -- Studs Terkel
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About the Author
Margaret Blackstone is a graduate of Yale University. She was awarded the Murray Fellowship and wrote and translated poetry in Mexico for a year. She is the author of several books on a variety of medical topics, including Beat Diabetes and Recovering from a C-Section, and a poet and an award-winning author of children's books. She lives in Greenwich Village with her family.Saud A. Sadiq, MD, is the Director of The Multiple Sclerosis Research and Treatment Center and Chairman, Department of Neurology, at St. Luke's Roosevelt Hospital in New York.Contributor residences: Blackstone: New York, New York; Sadiq: New York, New York
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Product details
Series: The First Year
Paperback: 288 pages
Publisher: Da Capo Lifelong Books; 2nd edition (February 1, 2007)
Language: English
ISBN-10: 1569242615
ISBN-13: 978-1569242612
Product Dimensions:
6 x 0.7 x 9 inches
Shipping Weight: 10.4 ounces (View shipping rates and policies)
Average Customer Review:
3.9 out of 5 stars
34 customer reviews
Amazon Best Sellers Rank:
#619,766 in Books (See Top 100 in Books)
This book was recommended by a friend when I was told I might have MS. It is a good book to start with if you know nothing about the disease and has some helpful info. I also picked up two other MS books Amazon recommended: "MS & your feelings" and "the MS Recovery Diet". Both also had some interesting insight and many personal stories of folks dealing with MS. All three books I just hopped around and read the parts that interested me at the moment. I realize that "one size fits all" advice does not apply with MS. MS patients' symptoms are extremely individualized and often quite different from person to person. I have since been "officially" diagnosed with the disease; I have found reading & researching did help me feel more hopeful, gave me more understanding about my future living with the disease, and made me realize there are many aspects of it I do have control over.
I have MS and I want to know all about it because it is so unpredictible and I can't run to the er every time something weird happens. This book helped me understand my MS better and now I know when a trip to the er is really necessary. everyone with MS or who knows someone with MS needs this book. The nurse that came to my house to show me how to give myself shots said you can't go back whatever damage the MS has done can't be changed, the goal now is to prevent future damage and this book will help
As another reviewer has said below, I was not impressed with the standard of research and referencing in this book. The drug section is indeed heavily biased towards the drug the author is taking and she even goes so far as to claim that other drugs are ineffective for most people-contrary to what the science says. I also found much of the emotional stuff moved too quickly for me- she really only deals with it in the first week, and as someone who has been diagnosed 6 weeks, I am still working towards the positive attitude that I should apparently have already. I also found the month 5 chapter on "life choices" difficult- the majority of stories are about how leaving your (bad) relationship will improve your life and I feel like the author doesn't acknowledge the immense comfort that a supportive partner can provide. I wouldn't recommend you purchase this to get you through the first year- I have found the information and counselling provided by my healthcare team and local MS society to be infinitely more helpful. If you are science-minded however, I found Multiple Sclerosis: The Guide to Treatment and Management to be an excellent evidence-based guide to the treatments out there.
My wife was dianosed with MS earlier this year. It has been a very difficult year for us, as you can well imagine. She has actually been having severe symptoms for longer than that, but she was initially misdiagnosed. She has read three books so far on MS and quite a number of articles and blogs on the subject. She got a lot out of this read because it came from someone who has MS. She says it is a good resource.
This book is worth buying if only for the extensive list of resources contained within.Beyond that, the author makes a terrifying and confusing disease seem less so. Gives patients all the information they need to know, with a big dose of "things will be okay, you can get through this" on the side.
This is a pretty solid book for someone first diagnosed with MS. It offers some good insights and I think it was worth the time to read it to help with the first few months of my diagnosis.
I was just Dx. with MS in January, 2016..this book has taught me a lot and I would recommend. It does teach you a lot about the disease and helps with the initial shock..BUT...this book does not teach you that their is a cure! If you are newly Dx. and going through the intitial shock, learn everything you can about your disease...including how to beat it. Google HSCT, it's a stem cell transplant, using chemo and your own stem cells, to cure MS at a 93% success rate if you have relapsing remitting MS...Dr. Richard Burt in Chicago is in his third clinical trial with awesome results. But there are many places you can go to around the world for the same treatment for a fraction of the cost of what it cost in the United States...I will be going to Clinica Ruiz in Mexico to "reboot" my immune system....I implore all of you who are newly Dx. not to blow this cure off as being a scam...yes, there are scams out there, but you will find plenty of facebook groups that are supporting the legitimate hospitals and clinics for this treatment. Chicago, Mexico, Russia, Singapore, Phillapines to only name a few. THERE IS A CURE None of these books will teach you this
I apparently bought this book too far into my diagnoses. Instead of telling you how to deal with MS, it tells you what to expect during the different phases from suspecting through the first year of having been diagnosed.
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